Comments: Report: No Scientific Evidence For Using Neurontin Or Topamax In Bipolar Disorder

I'm afraid you'll believe that I'm lying. But I've been on Neurontin, Topamax, Depakote, Lamictal. Lamictal was just a trial. Depakote for 3 months and I felt terrible. Neurontin and Topamax for a one year.
I withdrew from both at the same time. Topamax was hard. I cried but felt that it was not because I was sad. Just cried. If I took the crying stopped.
I would really love to be live to see all of these uncovered.
But after reading the DSM-5 draft I realized that things can go worse.
I'll ask the stupid question:
Why is it impossible to gather all people that are on Internet to make a campaign?
(I know, I know this is impossible but I would like to hear the explanations.)

Posted by Ana Lima at April 21, 2008 04:03 AM

Hi Philip:

For me, Lithium was toxic and it didn't even work. Tegretol has managed to prevent my major manic episode for 20 years and it seems innocent so far. I have it monitored carefully. I lost a kidney to Lithium in 1991 after taking it for 16 years to manage my mania. After that, I had to go on dialysis and have a transplant.
Now, I take nine different drugs, and they have lots of side-effects, believe me. But without them, I'm dead.
Keep up the great work.
Sandy Naiman

Posted by Sandy Naiman at April 21, 2008 05:35 AM

I thought as far as neurontin goes that this is really really old news...why is it resurfacing now...?? because no one listened the first time around?? I heard studies about this way before I was even following this crap.

The Last Psychiatrist, if I recall correctly claims that depakote and lamictal have similarly ridiculous failings, but I heard that there first.

I wouldn't be surprised at all though if we're all running around on toxic placebos as they've showed with antidepressants.

Posted by Gianna at April 21, 2008 08:32 AM

Where can I find this DSM-V draft? I'd like to see it.

Posted by Garth at April 21, 2008 10:46 AM

Garth,

Here's my idea - draft the dsm v, send it to the front line and let it die in combat. The DSM accurately portrays the impressions single observers of behavior made of others at a single moment in time but has neither internal nor external reliability. Using it to base a system of medical treatment, criminal justice and punishment and bulild a huge bureaucracy of education, "treatment," and punishment is a crime. Better we use King Lear, David Copperfield, or Pride and Prejudice, but I don't hear good things about the DSM V. The dsm seems to gain credibility as it loses reliability.

http://www.dsm5.org/

Posted by Sally at April 21, 2008 11:20 AM

And here I thought I was asking an innocent question.

As far as I can tell, the draft DSM won't be available until next year.

Posted by Garth at April 21, 2008 12:09 PM

Garth,
I've downloaded a .pdf from here:

http://appi.org/book.cfm?id=2292

Posted by Ana Lima at April 21, 2008 02:54 PM

Thank you, Ana - but just to note, that document isn't a draft of the new DSM, only a "research agenda".

Posted by Garth at April 21, 2008 04:07 PM

Garth,
I'm sorry. The word "agenda" in Portuguese does not have this sense. So I used the word that first came into my mind.
Terrible choice.:-}

Posted by Ana Lima at April 22, 2008 04:01 AM

I had topamax prescribed to me in the blink of an eye, for social phobia.

I had asked about mood stabilizers because a doctor tried to place me on one eons ago. "All I had to say I was thinking of trying this class of drug...."

I was handed a scrip in the blink of an eye.

Topiramate is shown to cause mania in even non-bipolar people.

It was suspected I had hypomania from this drug, and have had doctors try to place me on all sorts of medication unsuccessfully since then.

Posted by Lee at August 26, 2009 01:41 PM

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