May 05, 2009

Newsweek Profiles Icarus Project, "Mad Pride"

This week's Newsweek had a good article on The Icarus Project and Will Hall, a leader of the group, and what's called "Mad Pride."

"I met Hall one night at the offices of the Icarus Project in Manhattan. He became a leader of the group—-a 'mad pride' collective-—in 2005 as a way to promote the idea that mental-health diagnoses like bipolar disorder are 'dangerous gifts' rather than illnesses. While we talked, members of the group—Icaristas, as they call themselves—scurried around in the purple-painted office, collating mad-pride fliers. Hall explained how the medical establishment has for too long relied heavily on medication and repression of behavior of those deemed 'not normal.' Icarus and groups like it are challenging the science that psychiatry says is on its side. Hall believes that psychiatrists are prone to making arbitrary distinctions between 'crazy' and 'healthy,' and to using medication as tranquilizers.

"'For most people, it used to be, "Mental illness is a disease—here is a pill you take for it",' says Hall. 'Now that's breaking down.'"

It cannot breakdown fast enough for my taste. Anyway, the article--wherein someone from the Treatment Advocacy Center defends meds and Peter Kramer says psychotic depression is a disease (good work, Kramer; pick out the rarest of depressions to defend a crumbling paradigm)--is worth a read.

BTW, the article kind of parallels a piece on Icarus and Liz Spikol in the New York Times last year, which also included a quote from TAC's annoying Fuller Torrey. Interesting how the East Coast media fails to recognize the work others are doing on these issues in other parts of the US. That's not to take away from Icarus. Just making a point about the geographical impairment of some of my colleagues in the media.

Posted by Philip Dawdy at May 5, 2009 12:05 AM
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Comments

Thanks you for this article, Philip.

If nothing else, some people might become aware of the dangers of taking Prozac or another SSRI.

It certainly ruined Will Hall's life for many years.

From SSRI Stories, here is a tragedy of one man who now sits in prison. Even more tragic are the victims he created with his Prozac mania.

http://ssristories.com/show.php?item=248

Stephen Leith 239190
Carson Correctional Facility
PO Box 5000
Carson City, MI 48811

Jane Henney, M.D., Commissioner Food and Drug Administration
5600 Fishers Lane, Rm 1471
Rockville, MD 20857

Dear Dr. Henney: I am writing to tell you what PROZAC did to me and to urge you to take it off the market. In the years prior to 1992, I became depressed as I watched my wife slowly die of cancer. In January of 1992, I sought psychiatric help and was immediately prescribed PROZAC. After about 2 weeks it kicked in, and I was full of energy, I felt as though I could accomplish anything I put my mind to and began a major project. People in the school where I taught knew something had happened to me: I ran everywhere, even in the school! The kids joked that I was "hitting the acid cabinet" in the back of my chemistry room, and the Superintendent, thinking I was on street drugs, called me into his office and demanded to know what was going on. I lost all discretion regarding what I said, even speaking to strangers about personal things. I became obnoxious and the students started fearing me, especially when I began touching some of them. I now lacked control. After about six weeks, I sprained my ankle and the good feeling turned bad. My sleep became increasingly more fitful and the depression returned. The psychiatrist suggested taking me off PROZAC, but I begged him to leave me on it, fearing that the depression would be much worse without it. I started seeing things moving out of the corner of my eye, and I was constantly jerking my head in the perceived direction to see what it was. There was nothing, of course, but I was fooled into looking anyway. I was constantly agitated. I became disillusioned, thinking people didn't like me and were out to get me. When I was reprimanded for my inappropriate behavior (which began after taking PROZAC), I was certain the administration was trying to fire me. I was becoming paranoid. I had gone deeply into debt, acquiring many things I did not need after going on the drug, and now I was convinced they were out to take my job from me. QW-0585 cl

Page 2
My temper became shorter and anything could set me off. My anger burned so intensely it was scary. I had never experienced anything like it either before going on PROZAC or since I was taken off of it. I had a headache all the time and was confused much of the time. Something inside felt as if it wanted to crawl out of me, leaving a shell behind; my brain felt like it was sloshing in my skull. After nearly two years of decline, I snapped and killed the Superintendent at a grievance meeting pertaining to my bizarre behavior. Only minutes later I was going about the normal routine in my classroom, wondering if the shooting had really transpired; it did not seem real. Of course I was arrested and whisked away. When the lawyer arrived at the jail, I asked him if anyone got hurt! I have been incarcerated now for over six years on a life sentence. I have met others here who have been on PROZAC and several of them, without my prompting, have shared how the drug also intensified their anger and caused similar impulse control problems. So here I am, a trained educator, being punished for something I would not have done if I had not been on PROZAC. The Superintendent, a talented man, is dead and his family is bitter over his loss and their wrecked lives. The two others who were wounded are mistrustful in their dealings with others. My wife was disgraced in the community due to my actions, and she died from the cancer two years later without me having been there to help her and comfort her. My friends deserted me and my name and reputation ruined. As you can see, many lives besides my own have been negatively impacted due to what PROZAC did to me. This drug is dangerous. Both you and I know it, and it is time to do the right thing. Declare this drug unsafe and take it off the market. Sincerely, . ati Stephen Leith

Page 3
Stephen Leith 239190 Carson Correctional Facility PO Box 5000 Carson City, MI 48811 Jane Henney, M.D., Commissioner Food and Drug Administration 5600 Fishers Lane, Rm 1471 Rockville, MD 20857

Posted by: Rosie at May 5, 2009 07:05 AM

I have a post about Mad Pride in UK saved as draft.
I still don't understand why US and UK don't support each other.
Sorry, I really don't know.

Posted by: Ana at May 5, 2009 07:15 AM

"geographical impairment" that's a good one

Posted by: Stephany at May 5, 2009 08:30 PM

You mean the only choice is between forced medication and no medication? That's just ridiculous.

Mad Pride may say they are "pro-choice," but the Icaristas stigmatize medication as much as they claim society stigmatizes mental health diagnoses.

Since I've started reading Philip, I've become a heckuva lot more cautious and skeptical about what medications I take and what advice I get from doctors. But that doesn't mean I want anyone trying to limit my options in treating my depression -- including people who claim to speak for me.

Posted by: Larry at May 8, 2009 02:51 PM

Hi Larry,

You said:

"Mad Pride may say they are "pro-choice," but the Icaristas stigmatize medication as much as they claim society stigmatizes mental health diagnoses."

Can you give an example or elaborate? I am serious as I have heard this complaint expressed in different ways. I am not looking for a fight as I truly want to understand.

Posted by: AA at May 9, 2009 06:39 AM

Scatter (Icarus founder) uses psych medication.

Posted by: flawedplan at May 9, 2009 11:11 AM

I got the article the other day in the mail- with my weekly subscription. Working on a letter to the editor.....

Still going through it, but kudos to whomever took the picture of Will Hall. It's really really good.

Posted by: susan at May 10, 2009 06:14 AM

The Icarus Project is a diverse mix of people who take medications, people who don't take medications, and everything in between. For years we've been facilitating a multi-faceted dialog among all kinds of points of view outside of the narrow medical model of disorders, labels, and illness. Over the years we've gotten as many people saying we are too 'pro-meds' as we have saying we are too 'anti-meds.' The reality is that people's lives don't fit into black-or-white boxes, and it's easier to dismiss us as being on one side or the other than it is to listen to us.

We're committed to informed choice about psych meds from a harm reduction perspective. There are risks involved with any medications and there are risks involved with taking a non-medication approach. Pharmaceutical companies and doctors haven't been honest about those risks, nor have they offered holistic alternatives for people to choose from. Take a look at the Icarus community and you'll find vibrant dialog and a unique space for respecting choice and individual mental diversity. -- Will Hall

Posted by: Will Hall at May 12, 2009 09:33 AM

I cannot believe prozac is still being prescribed.I believe the incarcerated fellow is telling the truth.Prozac made me crazy for two weeks straight-psychotic.It turned out I had an allergy to alot of chemicals including chemicals found in coffee,beer,bread,Midol and even chocolate.Its called CEREBRAL ALLERGIES.If I drink coffee I hallucinate.Can you imagine the power Prozac has on people with CEREBRAL ALLERGIES????Or how many innocent sufferers of this disease are being diagnosed as mentally ill?Or being given more chemicals on top of thier existing caffienne allergy while they continue to drink coffeee.Cerebral allergies swell the brain like schizophrenia.It also causes loss of stucture to the brain(mass)causing you to loose your ability to use you higher cognitive functions of the forebrain.Henceforth cerebral allergies can lead to what appears to be a permanent brain dysfunction.It is reversable since the brain can repair to some degree if the offending chemicals are taken away.In nature caffiene is a Pesticide!!!!!!

Posted by: m at May 12, 2009 10:41 AM
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