April 06, 2009

Sen. Grassley Extends Pharma Probe To NAMI

As I noted last year, America's uber mental health advocacy group the National Alliance on Mental Illness (NAMI) was getting oodles from pharma companies, including $490,000 from Eli Lilly. What NAMI uses that money for isn't clear to me, but the group does a ton of lobbying on Capitol Hill and of state legislatures throughout the country. NAMI National's annual budget once ran around $12 million and roughly half of that came from pharma companies. Is it any wonder that NAMI never uttered a word of caution or alarm while scandals rolled out around Zyprexa and other atypical antipsychotics?

Anyway, Bloomberg is out now with news that Sen. Charles Grassley (R-Iowa) has sent a letter to NAMI National and asked the group to disclose its pharma funding.

"'I have come to understand that money from the pharmaceutical industry shapes the practices of nonprofit organizations which purport to be independent in their viewpoints and actions,' Grassley wrote in his letter."

According to Bloomberg, a NAMI report shows that the group took in $10.5 million in contributions in 2007, but the donors aren't broken out.

I cannot wait to see how the group responds to Sen. Grassley's query. I wonder if Sen. Grassley would also be interested in the fact that in 2006 NAMI's executive director, Michael Fitzpatrick, openly touted Johnson & Johnson's new drug Invega? Perhaps he'd also be interested in the fact that in 2003 an Eli Lilly executive hatched plans to use NAMI to help it blunt criticism of its dangerous drug Zyprexa. It was called "Operation Restore Confidence."

And, to be fair, the slightly-smaller advocacy group Mental Health America (the old NMHA) gets oodles of money from pharma too and also lobbies Congress and state legislatures (see the first link above), but is a bit more tasteful in its advocacy. I wonder if the Senator will be sending them a letter too.

Thanks to Beyond Meds for making me aware of the letter to NAMI.

Posted by Philip Dawdy at April 6, 2009 03:02 PM
StumbleUpon Toolbar del.icio.us Digg it reddit
Comments

Hopefully TAC is next.

Posted by: Lisa at April 6, 2009 05:45 PM

It's about time.

Posted by: Lilly NC at April 6, 2009 05:51 PM

As a Brit, I find Grassley's doggedness and attention to detail a bit embarassing... A couple of years ago, a Parliamentary committee carried out an investigation, and published a report, into the influence of the Worshipful Company of Apothecaries... To my knowledge, not one of the recommendations was ever acted on, and the thing was quietly shelved - any questions pertaining to said report are quietly ignored (in my experience), by the absurdly-named Department of Health, and its executive arm, the MHRA.

Until it dismissed me as "vexatious," I grilled (as have others, it should be said), the MHRA quite mercilessly over allegations that its assessment and licensing process amounted to little more than a rubber-stamping of companies' opinions of their own drugs, for example. However, it seems that the public (or somebody else's), interest is best served by ignoring these trifles.

Matt

Posted by: Matthew Holford at April 6, 2009 06:23 PM

Quote From Matt:

"As a Brit, I find Grassley's doggedness and attention to detail a bit embarrassing"

I must disagree with you here most adamantly.

I happen to find Senator Grassley, and as you say his "Doggedness and attention to detail" quite refreshing and a small hopeful sign from a government that has sat on their hands and watched Big Pharma and psychiatry virtually rape the American Public for decades.

This is the very Senator working diligently to expose the likes of Biederman and others within psychiatry, he has challenged a trillion dollar a year industry head on without fear, and now has the integrity to ask NAMI to come clean with their dirty laundry.

I would call him one of the best acting representations and watch dogs in the American Government for some time.

He's actually working for the people he represents; THE AMERICAN PUBLIC. I would really like to know the problem you have with that?

If you consider Senator Grassley embarrassing, then I can only hope some day to be in that kind of embarrassing company.

This is not England or the Parliament thankfully, at least I hope not quite yet anywise. So the examples you used really don't apply here in truth.

Posted by: Guess Who at April 6, 2009 07:50 PM

Second your statements, Guess Who. I don't see anyone else on the near or far horizon performing Grassley's heroic acts - so very overdue may they be,from any quarter of our federal government.

As to what NAMI does with all its $$$$ from pharma, I am pretty sure they maintain a physical office(s) in every single state.

Posted by: Anon. at April 7, 2009 06:08 AM

Let me get this straight. You, Mr. Dawdey, have been an active member of NAMI. In 2008, you accepted an award from Eli Lilly for your advocacy work as part of NAMI in the area of mental health (see http://www.heroesinthefight.org/Pages/past_heroes.aspx ) It came with a $500 check from Eli Lilly. There is a reference to it buried somewhere on your site, but now you come forward to attack NAMI for accepting funds from pharmaceutical companies, but you fail to mention your own conflicts of interest. I know you will say that you are pure of heart, and the award and honor from NAMI and Eli Lilly can not shake your objectivity in this matter, but that makes you no different than all the people you spend your days attacking, who in most cases are denied the chance to respond.

You have done enough. Have you no sense of decency, sir? At long last, have you left no sense of decency?

Philip Dawdy responds: you are wrong kyle. as i've explained here before, i've never been a member of nami. i sure as hell didn't get any money along with that award so your source is wrong or their imagination is awesome. the award was given to me by a local nami as recognition of my efforts in making the zyprexa scandal public. end of story.

Posted by: Kyle W. at April 7, 2009 08:09 AM

NAMI: it's like letting the guards at Auschwitz run the local chapter of B'nai B'rith.

Posted by: Tony at April 7, 2009 11:53 AM

I have been an active member of NAMI, like I have said. Where do I line up for my pharma money?

I believe NAMI has a serious legitimacy issue growing right now. It is possible that they may eventually decide to get back to their roots, and that they may have to develop a no-pharma-money policy to 1. steer clear of the gradual, seductive influence, and 2. maintain the reputation they have garnered - because their reputation translates into influence.

NAMI is not a made-up group like "Women In Government," that happpened to pop up right when Merck wanted to market Gardasil to each state by exective mandate, and NAMI is not a made-up fake group like the "North American Menopause Society," developed to seem like some community advocates fighting hot flashes, but fully dreamed up and implemented by Wyeth to promote Prempro.

NAMI is the real deal. Peer-to-peer and Family-To-Family, and Journey of Hope are invaluable experiences that optimally would be readily availalbe to any comsumer or family member of consumer, and are optimal ways for learning how to manage the challenge of a mental illness (yes, I believe there is such a thing please criticize the ideas and don't throw more personal attacks and name-calling at me -- there are plenty of issues to debate without running out and having nothing left to argue but about whether I have any scrap of compassion or not, etc).

In short, NAMI does a lot of unselfish good. In recent years, Big Pharma may be trying to take them over as Big Pharma has done with the conferences, CEU, FDA, medical education, thought leaders, etc. NAMI best beware.

Posted by: MedsVsTherapy at April 7, 2009 12:32 PM

Guess Who wrote:
"I must disagree with you here most adamantly..."

You misunderstand me, I think: I'm embarassed, because there has been no follow up by the British establishment to the Committee's report; no official "WTF's going on, here?" Nothing. It's business as usual.

An American might think that Grassley's intervention is evidence of the efficiency of the democratic process, or something. And one might be right to think that. But don't take it for granted, because it seems we have no high-ranking politician in the UK who's unnerved by Pharma's influence, and is prepared to take the time to understand the process, and make a nuisance of themselves in a way that has any impact. It may be that Grassley's interest is limited to tax dollars - I wouldn't know... But don't take him and his team for granted, anyway, because what he's doing is highly unusual.

Matt

Posted by: Matthew Holford at April 7, 2009 01:23 PM

Philip - does your critic has you mixed up with NAMI's own McMan - but surely he did not sell out for a mere $5K and a trinket?....

Matthew - I thought your post was a fine example of ironic British
humour.

....When NAMI's rank and file how they have been duped, there is sure to be be a mighty reckoning.

Posted by: Lilly NC at April 7, 2009 06:33 PM

TYPO correction
Philip - does your critic has you mixed up with NAMI's own McMan - but surely he did not sell out for a mere $5K and a trinket?....

Matthew - I thought your post was a fine example of ironic British
humour.

....When NAMI's rank and file realize how they have been duped, there is sure to be be a mighty reckoning.

Posted by: Lilly NC at April 7, 2009 06:34 PM

MvT I usually find your views informed and unobjectionable, but NAMI is and always has been sworn enemies of people living with SPMI, aka their children. The 1990s "decade of the brain" thrust NAMI into the mainstream and opened the door to their current partnership with Big Pharma, which validates their original, unswerving and absolutely odious agenda which amounts to exoneration. Of themselves, as parents. NAMI is an advocacy group that advocates for parents, period.

Does anyone not get this? Start here:

http://pn.psychiatryonline.org/cgi/content/full/39/22/2

Posted by: flawedplan at April 7, 2009 11:40 PM

I get it about NAMI. But there wouldn't be a NAMI w/o the pharma money and when Pharm comes a'callin' NAMI is there to do their bidding.

Lotsa NAMI propoganda lying around at the FDA SEROQUEL Hearing today. But no NAMI public speakers and no NAMIs on the Advisory BD. as they had been OUTED for conflict of interest.

YAY

Posted by: Anon. at April 8, 2009 05:15 PM

ANON.--what about Barbara Geller? she won an award from NAMI

Posted by: Stephany at April 8, 2009 05:54 PM

Lilly wrote:
"Matthew - I thought your post was a fine example of ironic British humour."

Ironic? In what way? I don't tend to do "ironic," btw - the absurdity and contradictions in life tend to satirize themselves, I find.

Matt

Posted by: Matthew Holford at April 11, 2009 02:32 PM
Post a comment









Remember personal info?






pic1.jpg

Winter Fundraiser Underway!!!
Patient Blogs. Sites.
Doctor Blogs. Sites.
Activists. News.
Social Networking. Forums.
Science. Big Pharma. Ethics.
Current Affairs
Seattle Stuff
Smoking. Stuff.

Info
About Furious Seasons
Email
Other Articles
ZYPREXA Documents
Alt ZYPREXA Documents Source
Blakemore-Brown Transcript

 Subscribe in a reader

Recent Entries
Winter Fundraiser, An Early Start
Reasons To Be Skeptical Of "Female Viagra" Drug, Big Pharma's Spanish Fly
Medical Marijuana For Autism?
AstraZeneca Whines About Chicago Tribune's Seroquel Coverage
Big Pharma's Sneaky Trick
Researchers Ignore Problems With Meds In Early Deaths, Blame Smoking, No Exercise
Researchers' New Pediatric Bipolar Disorder Symptoms Include Bed Wetting, Nightmares
Fort Hood Shooting: Was Psychiatrist-Shooter Psychotic Or A Terrorist?
Yale Researcher Links Childhood ADHD To Adult Crime, Drug Dealing
Senator Wants Pentagon To Account For Troop Anti-Depressant Use, Suicide Link
British Government To Limit Antipsychotic Use For Dementia
Child Psychiatrists Behaving Badly With Children
Utah Settles Zyprexa Claims For $24 Million
Psychiatrist Got $490,000 Pimping For Seroquel, Engaged In Wide Off-Label Use
Why Auto Insurance And Health Insurance Aren't The Same, Mr. President
Recent Comments

Matthew Holford on Sen. Grassley Extends Pharma Probe To NAMI

Stephany on Sen. Grassley Extends Pharma Probe To NAMI

Anon. on Sen. Grassley Extends Pharma Probe To NAMI

flawedplan on Sen. Grassley Extends Pharma Probe To NAMI

Lilly NC on Sen. Grassley Extends Pharma Probe To NAMI

Lilly NC on Sen. Grassley Extends Pharma Probe To NAMI

Matthew Holford on Sen. Grassley Extends Pharma Probe To NAMI

MedsVsTherapy on Sen. Grassley Extends Pharma Probe To NAMI

Tony on Sen. Grassley Extends Pharma Probe To NAMI

Kyle W. on Sen. Grassley Extends Pharma Probe To NAMI

Archives
November 2009
October 2009
September 2009
August 2009
July 2009
June 2009
May 2009
April 2009
March 2009
February 2009
January 2009
December 2008
November 2008
October 2008
September 2008
August 2008
July 2008
June 2008
May 2008
April 2008
March 2008
February 2008
January 2008
December 2007
November 2007
October 2007
September 2007
August 2007
July 2007
June 2007
May 2007
April 2007
March 2007
February 2007
January 2007
December 2006
November 2006
October 2006
September 2006
August 2006
July 2006
June 2006
May 2006
April 2006
March 2006
February 2006
January 2006
December 2005
November 2005
October 2005
September 2005
Resources
Mental Health America
National Alliance on Mental Illness
Depression and Bipolar Support Alliance
National Institute of Mental Health
McMan Web
Search


Powered by
Movable Type 3.2