April 06, 2009Sen. Grassley Extends Pharma Probe To NAMIAs I noted last year, America's uber mental health advocacy group the National Alliance on Mental Illness (NAMI) was getting oodles from pharma companies, including $490,000 from Eli Lilly. What NAMI uses that money for isn't clear to me, but the group does a ton of lobbying on Capitol Hill and of state legislatures throughout the country. NAMI National's annual budget once ran around $12 million and roughly half of that came from pharma companies. Is it any wonder that NAMI never uttered a word of caution or alarm while scandals rolled out around Zyprexa and other atypical antipsychotics? Anyway, Bloomberg is out now with news that Sen. Charles Grassley (R-Iowa) has sent a letter to NAMI National and asked the group to disclose its pharma funding. "'I have come to understand that money from the pharmaceutical industry shapes the practices of nonprofit organizations which purport to be independent in their viewpoints and actions,' Grassley wrote in his letter." According to Bloomberg, a NAMI report shows that the group took in $10.5 million in contributions in 2007, but the donors aren't broken out. I cannot wait to see how the group responds to Sen. Grassley's query. I wonder if Sen. Grassley would also be interested in the fact that in 2006 NAMI's executive director, Michael Fitzpatrick, openly touted Johnson & Johnson's new drug Invega? Perhaps he'd also be interested in the fact that in 2003 an Eli Lilly executive hatched plans to use NAMI to help it blunt criticism of its dangerous drug Zyprexa. It was called "Operation Restore Confidence." And, to be fair, the slightly-smaller advocacy group Mental Health America (the old NMHA) gets oodles of money from pharma too and also lobbies Congress and state legislatures (see the first link above), but is a bit more tasteful in its advocacy. I wonder if the Senator will be sending them a letter too. Thanks to Beyond Meds for making me aware of the letter to NAMI. Posted by Philip Dawdy at April 6, 2009 03:02 PM
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Hopefully TAC is next. Posted by: Lisa at April 6, 2009 05:45 PMIt's about time. Posted by: Lilly NC at April 6, 2009 05:51 PMAs a Brit, I find Grassley's doggedness and attention to detail a bit embarassing... A couple of years ago, a Parliamentary committee carried out an investigation, and published a report, into the influence of the Worshipful Company of Apothecaries... To my knowledge, not one of the recommendations was ever acted on, and the thing was quietly shelved - any questions pertaining to said report are quietly ignored (in my experience), by the absurdly-named Department of Health, and its executive arm, the MHRA. Until it dismissed me as "vexatious," I grilled (as have others, it should be said), the MHRA quite mercilessly over allegations that its assessment and licensing process amounted to little more than a rubber-stamping of companies' opinions of their own drugs, for example. However, it seems that the public (or somebody else's), interest is best served by ignoring these trifles. Matt Posted by: Matthew Holford at April 6, 2009 06:23 PMQuote From Matt: "As a Brit, I find Grassley's doggedness and attention to detail a bit embarrassing" I must disagree with you here most adamantly. I happen to find Senator Grassley, and as you say his "Doggedness and attention to detail" quite refreshing and a small hopeful sign from a government that has sat on their hands and watched Big Pharma and psychiatry virtually rape the American Public for decades. This is the very Senator working diligently to expose the likes of Biederman and others within psychiatry, he has challenged a trillion dollar a year industry head on without fear, and now has the integrity to ask NAMI to come clean with their dirty laundry. I would call him one of the best acting representations and watch dogs in the American Government for some time. He's actually working for the people he represents; THE AMERICAN PUBLIC. I would really like to know the problem you have with that? If you consider Senator Grassley embarrassing, then I can only hope some day to be in that kind of embarrassing company. This is not England or the Parliament thankfully, at least I hope not quite yet anywise. So the examples you used really don't apply here in truth. Posted by: Guess Who at April 6, 2009 07:50 PM Second your statements, Guess Who. I don't see anyone else on the near or far horizon performing Grassley's heroic acts - so very overdue may they be,from any quarter of our federal government. As to what NAMI does with all its $$$$ from pharma, I am pretty sure they maintain a physical office(s) in every single state. Posted by: Anon. at April 7, 2009 06:08 AMLet me get this straight. You, Mr. Dawdey, have been an active member of NAMI. In 2008, you accepted an award from Eli Lilly for your advocacy work as part of NAMI in the area of mental health (see http://www.heroesinthefight.org/Pages/past_heroes.aspx ) It came with a $500 check from Eli Lilly. There is a reference to it buried somewhere on your site, but now you come forward to attack NAMI for accepting funds from pharmaceutical companies, but you fail to mention your own conflicts of interest. I know you will say that you are pure of heart, and the award and honor from NAMI and Eli Lilly can not shake your objectivity in this matter, but that makes you no different than all the people you spend your days attacking, who in most cases are denied the chance to respond. You have done enough. Have you no sense of decency, sir? At long last, have you left no sense of decency? Philip Dawdy responds: you are wrong kyle. as i've explained here before, i've never been a member of nami. i sure as hell didn't get any money along with that award so your source is wrong or their imagination is awesome. the award was given to me by a local nami as recognition of my efforts in making the zyprexa scandal public. end of story. Posted by: Kyle W. at April 7, 2009 08:09 AMNAMI: it's like letting the guards at Auschwitz run the local chapter of B'nai B'rith. Posted by: Tony at April 7, 2009 11:53 AMI have been an active member of NAMI, like I have said. Where do I line up for my pharma money? I believe NAMI has a serious legitimacy issue growing right now. It is possible that they may eventually decide to get back to their roots, and that they may have to develop a no-pharma-money policy to 1. steer clear of the gradual, seductive influence, and 2. maintain the reputation they have garnered - because their reputation translates into influence. NAMI is not a made-up group like "Women In Government," that happpened to pop up right when Merck wanted to market Gardasil to each state by exective mandate, and NAMI is not a made-up fake group like the "North American Menopause Society," developed to seem like some community advocates fighting hot flashes, but fully dreamed up and implemented by Wyeth to promote Prempro. NAMI is the real deal. Peer-to-peer and Family-To-Family, and Journey of Hope are invaluable experiences that optimally would be readily availalbe to any comsumer or family member of consumer, and are optimal ways for learning how to manage the challenge of a mental illness (yes, I believe there is such a thing please criticize the ideas and don't throw more personal attacks and name-calling at me -- there are plenty of issues to debate without running out and having nothing left to argue but about whether I have any scrap of compassion or not, etc). In short, NAMI does a lot of unselfish good. In recent years, Big Pharma may be trying to take them over as Big Pharma has done with the conferences, CEU, FDA, medical education, thought leaders, etc. NAMI best beware. Posted by: MedsVsTherapy at April 7, 2009 12:32 PMGuess Who wrote: You misunderstand me, I think: I'm embarassed, because there has been no follow up by the British establishment to the Committee's report; no official "WTF's going on, here?" Nothing. It's business as usual. An American might think that Grassley's intervention is evidence of the efficiency of the democratic process, or something. And one might be right to think that. But don't take it for granted, because it seems we have no high-ranking politician in the UK who's unnerved by Pharma's influence, and is prepared to take the time to understand the process, and make a nuisance of themselves in a way that has any impact. It may be that Grassley's interest is limited to tax dollars - I wouldn't know... But don't take him and his team for granted, anyway, because what he's doing is highly unusual. Matt Posted by: Matthew Holford at April 7, 2009 01:23 PMPhilip - does your critic has you mixed up with NAMI's own McMan - but surely he did not sell out for a mere $5K and a trinket?.... Matthew - I thought your post was a fine example of ironic British ....When NAMI's rank and file how they have been duped, there is sure to be be a mighty reckoning. Posted by: Lilly NC at April 7, 2009 06:33 PMTYPO correction Matthew - I thought your post was a fine example of ironic British ....When NAMI's rank and file realize how they have been duped, there is sure to be be a mighty reckoning. Posted by: Lilly NC at April 7, 2009 06:34 PMMvT I usually find your views informed and unobjectionable, but NAMI is and always has been sworn enemies of people living with SPMI, aka their children. The 1990s "decade of the brain" thrust NAMI into the mainstream and opened the door to their current partnership with Big Pharma, which validates their original, unswerving and absolutely odious agenda which amounts to exoneration. Of themselves, as parents. NAMI is an advocacy group that advocates for parents, period. Does anyone not get this? Start here: http://pn.psychiatryonline.org/cgi/content/full/39/22/2 Posted by: flawedplan at April 7, 2009 11:40 PMI get it about NAMI. But there wouldn't be a NAMI w/o the pharma money and when Pharm comes a'callin' NAMI is there to do their bidding. Lotsa NAMI propoganda lying around at the FDA SEROQUEL Hearing today. But no NAMI public speakers and no NAMIs on the Advisory BD. as they had been OUTED for conflict of interest. YAY Posted by: Anon. at April 8, 2009 05:15 PMANON.--what about Barbara Geller? she won an award from NAMI Posted by: Stephany at April 8, 2009 05:54 PMLilly wrote: Ironic? In what way? I don't tend to do "ironic," btw - the absurdity and contradictions in life tend to satirize themselves, I find. Matt Posted by: Matthew Holford at April 11, 2009 02:32 PMPost a comment
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