March 25, 2009NIH's Stimulus Money For Autism Makes Me Scratch My HeadNews came out yesterday via the WSJ's Health blog that the National Institute of Mental Health has announced that it's gotten $60 million from the federal stimulus package and is directing it to "Research to Address the Heterogeneity in Autism Spectrum Disorders," according to NIMH. "Examples of research topics include developing and testing diagnostic screening tools for different populations; assessing risk from prenatal or early life exposures; initiating clinical trials to test early interventions; or adapting existing, effective pediatric treatments for older children, teens, and adults with ASD." I'm all in favor of researching the hell out of autism spectrum disorders, but does anyone seriously believe that this $60 million will create new jobs and stimulate the economy? I don't. If anything, it'll redeploy already-well-paid researchers and their staffs from other projects into autism research projects defined by NIMH. I fail to see how that creates new jobs. I'm not hearing about mass layoffs of researchers. I guess it falls into line with my initial suspicions when I first saw details of the stimulus plan a ways back--and that is that a fair amount of the $500 billion or so in spending (and borrowing from China) would go to priorities that can't create new jobs. For example, paying a portion of laid-odd peoples' COBRA. That won't suddenly create new health care jobs and won't create a job for the laid-off person, so it kind of defeats the stated purpose of President Obama's stimulus package (or Congress' or whomever's it is), which is to create jobs, and that bugs me. Don't read into this that I am hostile to autism research. I'm not. I simply think it's something more properly addressed through the regular budget cycle. I am a bit suspicious, however, of adapting "effective pediatric treatments" to older youngsters and adults. While I suppose some of that might go to various behavioral and learning therapies, I fear that a good chunk of it will go to researchers studying Risperdal--the lone approved autism medication for kids--and how to adapt that to adults. Wouldn't there already be plenty of evidence of its use off-label? Here's a 1998 study. Perhaps I am too much of a skeptic, but there's something here that I just don't trust beyond the jobs issue. Then again, perhaps my suspicions are utterly misplaced. At any rate, it will be interesting to see which proposals NIMH funds and if said fundage creates any new jobs. Posted by Philip Dawdy at March 25, 2009 12:05 AM
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How about a stimulus package that gives parents of autistic kids insurance, the child insurance AND the parents quality respite sorely needed so often as a caregiver? That would be nice, so would a big chunk of money given to research brain damage in autistic children after psych med use. I can tell you what--Risperdal agitates autistic kids I teach--it's given for "behavior modification" (and some kids still have meltdowns)very often. Brain damage from psych meds not needed for autistic spectrum kids is a huge interest to me, as it could apply to my own child. This is a personal opinion/rant, not expecting any comment discussion back, or wanting it. Posted by: Stephany at March 25, 2009 03:46 AMI have also been watching the stimulus package(s) for signs of any new jobs. The only sure bet-yet not approved- is a proposed increase in "volunteer jobs" at minimum wage. The autism money, to which I could not morally object, only makes me wonder what it was the researchers were doing instead that might have had value to mental illness. Posted by: anonymous at March 25, 2009 06:13 AMUnfortunately, "assessing risk from...early life exposures" sure sounds like it's directing more $$$ toward researching the already disproved vaccine-autism connection. Posted by: Ryan Biggs at March 25, 2009 06:20 AMAnother thing: psychiatry and autism just don't belong in the same sentence, and as a parent of a "duel-dx" child, unless the autism is predominant the mental illness part becomes focus from professionals, and neuro-docs are scared to practice on a child with any psych history, that happened to my daughter and she's stuck in a place all of the professionals call "complex". Maybe this is the bitter side of me talking now, but yeah, this is not right, and what I see is a future for autistic kids that could be less than best outcomes if psych medication starts to be used as interventions! I've seen too many kids affected by this with bad outcomes at work and my own daughter. It's very frustrating, and I am not against research for the cause of autism at all that's for sure. Posted by: Stephany at March 25, 2009 10:55 AM"...testing diagnostic screening tools for different populations; assessing risk from prenatal or early life exposures; Wow! The whole idea is NOT to find that autism is generally mercury related. Posted by: Phil at March 25, 2009 11:09 AMHaving worked with a lot of kids on the "spectrum", especially kids with Asperger's, I don't see drugs as the answer AT ALL. I hope the strong parent advocate groups get in there and monitor where the money's going. And, whoever said autism and mental illness aren't in the same category is right, from my all-too-extensive experience with both groups. Posted by: anonymous at March 25, 2009 02:09 PMFirst, The NIH should not fund anything with the objective to benefit the economy. Clinical trials are to gain knowledge. Secondly, some diseases, and their etiologies, are a mystery, and likely will continue to be: Thoughts Regarding Autism Spectrum Neurodevelopmental Disorders Of these rare neurological disorders, Autism is the most common. The autism spectrum reflects the broad range of symptoms in which the names of these autism disorders have been given their own name for their disorder.
I am the mother of an autistic 6 year old daughter who did not respond well to the the "autistic diet" and whatever undeveloped programming in place at her public school. I don't believe the country is prepared at all to deal with this horrible epidemic. Money needs to be spent in prevention and providing free child care assistance to parents. Philip Dawdy responds: spending money on this is fine but should be done in the context of the regular annual budget not inside emergency legislation to stimulate the economy. Posted by: Kendra at May 6, 2009 03:25 PMPost a comment
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