February 06, 2009

Biederman Defender Attacks Me, FS Readers

The other day I noted a newspaper article in Boston in which defenders of controversial Harvard child psychiatrist Joseph Biederman voiced their support for the embattled doctor. I thought what I wrote was pretty tame and non-critical of either the doctor or his supporters' views. Yesterday, one of Biederman's defenders swung through this site to lash out at me and those of you who read this site.

"This will be my one and only comment to this egregious blog. Clearly you and those that comment on your blog are either in desperate need of neuropsychological evaluations and suffer from neuropsychiatric brain disorders - OR - you are the ones who are members of a cult called - Scientology -. It is insulting and disturbing beyond measure to live among a citizenship that believes the brain is not an organ in the human body. Do you also believe the heart is mechanical and not in need of medical treatment?

"The comments on this blog and respective to the Globe article and Dr. Biederman's many supporters; reflect an illiterate understanding and misconception of the brain, familial heritability and genetic loading. Dr. Biederman's supporters did not "just" pop-up. Dr. Biederman is recognized by countless individuals in the United States and around the globe, as the modern father of child psychiatry. He will be remembered and cherished in history and medical books for decades and centuries to come...And long after we are all six feet under ground.

"As long as I am alive, I will fight for my family members, my son and those around me that suffer from brain disorders. As advocates for mental health parity, research and targeted treatments...none of us will be thwarted by narrow-minded and contentious individuals like those of you on Furious Seasons. Marcie Lipsitt"

I seriously doubt that Biederman will be cherished in "history and medical books." He's more likely to be reviled, but Lipsitt is welcome to her opinion.

Lipsitt describes herself on this website as:

"I am also a state and national advocate for mental health parity and have an almost 19 year old son with pediatric bipolar disorder, AD/HD, obsessive-compulsive disorder, anxiety disorders, Asperger's Syndrome, executive functioning deficits, learning disabilities and additional medical morbidities. I am a proud member and actively participate on the Pediatric Psychopharmacology Advisory Council at the Massachusetts General Hospital."

It's sad to learn that her son is in such tough shape, but one wonders when his mom might stop describing him as having pediatric bipolar disorder since he's now older than 18. Or is it once a bipolar child, always a bipolar child?

I cannot find any information on that advisory council, but it sure smells like something associated with the pediatric pharmacology research center at Massachusetts General that was funded to the tune of $700,000 by J&J in 2002. That reporting was courtesy of the New York Times. One wonders if Lipsitt has lashed out at them as well. Or perhaps at Jack McClellan, a University of Washington child psychiatrist who considers the bipolar child paradigm to be mostly nonsense.

Anyway, just thought I'd share.

BTW, Marcie, I'm not a Scientologist or an anti-psychiatry believer and I don't need a check-up from the neck up, as you so calmly suggest. I'm merely skeptical as hell about psychiatry and what it's doing with kids and adults in this country. So are my readers. Also, if any Biederman defenders happen upon this post, they need to know that if they refer to me again as a Scientologist, then I will consider it slander. You've been warned.

Posted by Philip Dawdy at February 6, 2009 12:03 AM
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Comments

I'm not a scientologist either, nor am I on a Mass General Advisory Counsel; talk about a conflict of interest!

Personally, my daughter has been severely injured and damaged from a misdiagnosis of childhood bipolar in 1999, and the drugs have nearly killed her; she's disabled now.

My daughter is not the only casualty of Biederman's pharma-funded BS.

Posted by: Stephany at February 5, 2009 08:28 PM

PS--Keep up the good work here keeping the heat on this topic Philip. I appreciate it! Everyone reading here will consider the source of that commenter(Marcie).

When a person is on an Advisory Counsel at Mass General, they might wonder how the Senator Grassley investigation might affect them!

Criminals and corruption at the workplace.

Posted by: Stephany at February 5, 2009 08:40 PM

This comment is directly to Lipsitt and her blind followers of Biederman and his form of killing medicine.

Quote from the renowned brain chemistry and geneticist expert Lipsitt:
"Biederman is recognized by countless individuals in the United States and around the globe, as the modern father of child psychiatry. He will be remembered and cherished in history and medical books for decades and centuries to come...And long after we are all six feet underground."

Funny how those good German's were spouting that same propaganda horse manure about the Nazi Doctors of their time. If ding dong Lipsitt wouldn't have starting drugging her kid at some outrageous age (was it age five or six) just maybe the adult would be better off today; if this adult has the capacity to even still speak for themselves?

Biederman should be in prison without a medical license, instead of continuing to torture innocent children with dangerous medications; which very well may damage them for life or make them jump off a twenty story building in New York when they are an adult.

What more can I say advisory committee socialite Lipsitt, but your truly a class piece of work with little doubt.

Peace be with you

Posted by: loyal reader at February 5, 2009 08:47 PM

Geez, Ms Lipsitt is pretty rabid in her attack.

Posted by: SallyT at February 5, 2009 10:07 PM

Dear Marcie, I once lived at a center of a psychiatric universe, too - Philadelphia. Though Boston, which I am fully familiar with , takes the cake in this country.

How dare you accuse me of being a Scientologist? Of knowing nothing about heritability and genetics (though I do get pounded about it on these boards, I ultimately come back for more because HERE we don't bow and scrape to doctors with giant egos who are on the take). My grandmother died in a sanitarium at age THIRY FOUR. My father was killed by early ECT at age THIRTY TWO. Both my children had REAL bipolar I onset at age TWENTY ONE. And now my beloved son is dead from Zyprexa AGE 39. Funny how I didn't notice any pediatric bipolar around back in the eighties when my children were getting ill. Funny how it doesn't seem to show up in other countries. Funny how the doctors promoting this diagnosis are making boucoup buckets of money off their ties with Pharma.

I am asking you neither for your sympathy nor your wrath. Only suggesting that you might want to think about how you might get brave, shed some of those labels weighing down your poor son, and give him a chance at life.

I must conclude with saying that you have a nerve to come after the likes of me. I am glad you don't intend it to happen again.

Posted by: sorrowful at February 5, 2009 10:10 PM

Dear Marcie,

As someone with a learning disability, antidepressants worsened my LD issues to the point where I am slowly tapering off of them. Can't imagine what BP meds are doing to your son if he is in a similar situation.

By the way, LD, AS, executive function and similar type disorders are not a mental illness as they are neurodevelopmental issues. It is because of people like you who falsely claim that they are that cause my issues to not be taken seriously. Anyway, you are about as useful to me as an LD advocate as Herbert Hoover was in solving the Great Depression.

If Joseph Biederman is as great as you claim he is, then please explain to me what he knows about executive functioning for example. Does he have ideas how to compensate for that? What about social skills training for people with AS? Does he realize that sensory processing disorder is often misdiagnosed as BP and should be remedied through Occupational Therapy and not meds? Somehow, I don't think this person who you describe as wonderful has a clue about those issues.

Start doing some real advocating instead of being a med pusher and no, I am not a scientologist.

Posted by: AA at February 6, 2009 01:29 AM

Great post Phil! This Lipsitt sounds like a lunatic! As for her son, well, he sounds like a wreck! Although I sympathize, one must remember that the apple doesn't fall far from the tree! Boy and some mother she is! I sure as hell wouldn't want my mom describing me that way in public!

Posted by: Tom at February 6, 2009 05:07 AM

Marcie after 20 years of psych meds (which I started taking at the "pediatric" age of 19) I am physically disabled as a result of their use. Strangely enough I'm completely sane after having come off the drugs.

That the brain is an organ does not mean that PSYCHOLOGICAL issues are a sign of that organ mis-firing.

Psych drugs and a man who prescribes drugs much like Biederman has left me physically handicapped.

I have worked through most of the family dynamic issues that led to my diagnosis and am now mentally stable.

The only chemical imbalance in my life was caused by drugs.

best of luck to you and your son. I hope you let him make his own choices now that he is indeed an adult. 19, as Philip pointed out is not a child. He deserves the right of self-determination.

Posted by: Gianna at February 6, 2009 05:53 AM

Poor kid. He might have one of those diagnoses. The rest may just be side effects from the psychiatry cocktail that I am sure this kid is on. Tragic.

Posted by: MedsVsTherapy at February 6, 2009 06:17 AM

She's a bit over the top in the way she says things, admittedly, but that does not discount the points she makes. Made me think a bit, anyway.

Posted by: nomdeplume at February 6, 2009 08:30 AM

Marcie makes quite a leap from saying those who criticize Dr. Biederman and his diagnostic and treatment paradigms ipse facto don't know a thing about the brain or don't ever believe in neurological differences and problems. That simply isn't true and misses the whole point of what many of us are doing here on this blog. How much does she know about how these drugs affect the brain? And how much does she know about true emotional and psychological healing, one thing that meds will never bring about? She would do well to stick around and start reading this blog and some of the other ones linked in the blogroll. Her son is 19 now; if the treatment is so great let's hear him speak for himself. One wonders if she even knows what iatrogenesis is.

Posted by: Sara at February 6, 2009 08:56 AM

"19 year old son with pediatric bipolar disorder, AD/HD, obsessive-compulsive disorder, anxiety disorders, Asperger's Syndrome, executive functioning deficits, learning disabilities and additional medical morbidities."

Bipolar, OCD, ADHD all together?
I never understand the diagnose "Bipolarity" without the number "1" or "2".
It makes all the difference.
I don't even consider Bipolar the adequate name for Bipolar 2.
Without mania bipolar means nothing to me and the old "maniac-depressive psychosis" should be back to clear things up.

"anxiety disorders, executive functioning deficits, learning disabilities and additional medical morbidities."

I'm not sure if these are diseases of symptoms of Bipolarity, OCD and ADHD.

Philip,
Yes, "pediatric" is no longer the right word since the boy is already almost 19 years old.
What is of great relief for me is the fact that his mother knows exactly how to treat all these diseases and knows exactly what to prescribe to each one of them.
Also the side effects are mild when someone has access to the right psych-drugs.

Why is Lipsitt so concerned with this blog is beyond me as well as the reason for the insulting comment.

"I sure as hell wouldn't want my mom describing me that way in public!"
Tom,
I also thought about that but, you know, not all mothers are like Stephany and many other amazing mothers that are blogging about their sons or daughters as human beings not as a psychiatric problem.

It is insulting and disturbing beyond measure to live among a citizenship that believes the brain is not an organ in the human body. Do you also believe the heart is mechanical and not in need of medical treatment?

I believe that all of those who comment herehad anatomy lessons in high school. I'll google "brain" just in case. If I remember correctly it was consider an organ and a quite complex organ.
I don't know, science changes. Pluto is no longer consider a planet by some physicians. Others are pissed of because of this.
I cannot help myself thinking how wonderful it would be if the heart was something mechanical!
No red blood, please!
A little adjustment here, some gas there...
The strange to me is that it seems that scientists and physicians want us to believe that it's just like that.
A imbalance here another imbalance there...
just like a machine.

Posted by: Ana at February 6, 2009 09:52 AM

I'm so sad!
Yes, the brain is still consider as an organ.

"The human brain is the center of the human nervous system and is the most complex organ in any creature on earth. It has the same general structure as the brains of other mammals, but..."

as the heart:
"The heart is a muscular organ in all vertebrates responsible for pumping blood through the blood vessels by repeated, rhythmic contractions,..."

The same "thing" that tells me who I'm and is responsible for many highly important aspects is side by side with a bunch of muscles whose sole aim is spreading blood over my body.

This is so unfair!

I remember when I was an teenager the first heart implant Richard Barnard was the name of the physician that I can still recall.

So sad I will not be alive to see the first brain implant.

This is so unfair!

There will be adds such as "Brain donation wanted."

I bet the prize will be fixed according to the IQ!


Posted by: Ana at February 6, 2009 10:25 AM

This blog is important. It provides important information and is referred to all over the blogosphere. Keep up the good work, please!!!!

Posted by: Lilian Nattel at February 6, 2009 11:12 AM

Interesting that there is nothing on the web or the MGH site about that Pediatric Psychopharmacology Advisory Council. What are they trying to hide? And just who are they?

Posted by: Sara at February 6, 2009 11:43 AM

To: Marcie
Cc: World

I am a regular reader of Furious Seasons as well as a professional educator, technologist, and phd student at Columbia's School of Journalism. I rely on Philip's superb journalism in my research, as he is one of the few professional journalists with the courage, tenacity, and ethical integrity to cover one of the most important issues of our time.

I am writing to you in support of Phillip, and to implore you to consider the multi-faceted complexities of the issues the Furious Seasons community explores. I am startled by your allegation that his readers are "desperate need of neuropsychological evaluations and suffer from neuropsychiatric brain disorders - OR - you are the ones who are members of a cult called - scientology.." and that we are "narrow-minded and contentious."

I personally do not suffer from any brain disorders, nor am I a Scientologist. Rather, I am trying to judge reality in a world of mis/over-information that seems to have gone quite mad.

I urge you to read my open letter to the FDA and to try to keep an open, compassionate mind when it comes to learning about alternate perspectives around madness, and to be a bit more critical of the political economy driving the corruption in the pharmaceutical industry.

http://alchemicalmusings.org/2008/09/11/open-letter-to-the-fda/

The evidence is mounting that a scandal is brewing that will rival Big Tobacco's.

I appreciate your efforts to fight for the human rights and parity laws, and wish your son the best of luck in life and love.

warm regards,
/Jonah

Posted by: Jonah at February 6, 2009 11:53 AM

Sometimes getting a glimpse of someone else's disillusionment can call into question all that you believe is right. That's upsetting for a lot of people. When you have labels and are accepting a dogma as to your biological destiny or the destiny of your "mentally ill" loved ones, it requires a lot of faith in the system you follow. I think that this is a typical response from someone whose belief system is being shaken. If there wasn't anything to the stance of Furious Seasons, a person like this wouldn't be attacking on such a personal level. This kind of argument is kind of like you see from people wanting to bicker about religion. People who can't stand an opposing viewpoint because they only feel right when people agree with them.

Posted by: Angel84 at February 6, 2009 12:07 PM

I suggest anyone who thinks they know anything about psych meds and the brain go take a Biological Psychology class at thier local community college. It's easy enough to get into so long as you have taken an algebra class in your life, and it is a little challenging because the brain and nervous system are such complex oragns, but it will empower you to call "bullshit" on your psych doc when they try to give you a Big PHrma speil about why you need x y or z drug and how it works in the brain. (you'll know better, you'll know it's never that simple)

I've got some sort of problem with how I handle life that may or may not have something to do with "chemical imbalances" (most likely it's something far more complex than that) and I do take a psych med for that, Seroquel, which I hate and love all at once. I don't plan to stay on it forever because I do not want TD or Diabieties. But for now it is helping a little more than it is hurting so I stay on it. The point being that if I can handle a Biopsych class while on a psychotroopic that has such devastating effects on my intellectual abilities, then I think anyone who's not horribly depressed can do the same.

I'm taking the class because I am sick of "guessing" at exactly what the many many abstracts I have read actually are refering to (in full, I get a lot of it but many things are still beyond me), sick of not being able to use the language of the psych doc to cut them down when they start talking crap that even I as a layman know is not true but still do not know enough to tell them that in words that they can understand/RESPECT. I want to be as empowered as I can be because the only way I am going to get put on the right sort of meds and get away from the russian roulete game these idiot doctors play is if I know enough to actually form an opinion they'll listen to.

If I have to go on to audit 8 or 9 more classes at the local UC medical school, afer getting my chemistry courses done at the local college, in order to flesh out my understanding until I AM on the same level as an average Psych MD when it comes to understanding the brain and psychopharmacology I will do it because I am DETERMINED to have a SAY in my own treatment. And I am DETERMINED to no longer have to put up with the ATTITUDE PROBLEMS that I get from psych docs when I want a REAL EXPLANATION of WHY they are suggest this or that med BEFOR I am going to take it.

Posted by: katielou82 at February 6, 2009 12:50 PM

"I rely on Philip's superb journalism in my research, as he is one of the few professional journalists with the courage, tenacity, and ethical integrity to cover one of the most important issues of our time

Jonah,
You are right.
What these drugs are causing will be recognized in the history of medicine as something "unacceptable" to say the least.
Thank you Philip for your work and I'm sure it will be a reference... in the future.


Posted by: Ana at February 6, 2009 02:02 PM

Hi Sara,

You said, "19 year old son with pediatric bipolar disorder, AD/HD, obsessive-compulsive disorder, anxiety disorders, Asperger's Syndrome, executive functioning deficits, learning disabilities and additional medical morbidities."


Bipolar, OCD, ADHD all together?
I never understand the diagnose "Bipolarity" without the number "1" or "2".
It makes all the difference.


I don't even consider Bipolar the adequate name for Bipolar 2.


Without mania bipolar means nothing to me and the old "maniac-depressive psychosis" should be back to clear things up.


"anxiety disorders, executive functioning deficits, learning disabilities and additional medical morbidities."


I'm not sure if these are diseases of symptoms of Bipolarity, OCD and ADHD


As a person with a learning disability, I will try to explain the issues without getting too dry and technical. If I do, forgive me.


Gosh, where to begin. To start with, people might want to go to http://www.ldonline.org as this gives a basic explanation as to what LD is. Essentially, it is a wire shortage in the brain that causes people to have difficulties in various areas such as reading, hearing, writing, and seeing even though they have average or above average intelligence.


For example, even though my eye sight is fine, I can proof read a document a million times and I would still not catch grammatical errors as I have problems with perceiving what I see accurately. As a result, I will use screen reading software because I need to hear what I am reading.


I also have trouble decoding non verbal language. For example, if someone offers me a ride home, I have to use other ways to figure out if they are offering because they want to be polite or of they really mean what they say. Most people without the LD I have would not have that problem.


The reason LD gets intertwined with depression, anxiety, and related mental health issues is that due to the stress of dealing with a brain that is different (not broken) and not knowing why you are having difficulties, you develop so called mental health issues.


Even when you have a diagnosis, it is still stressful trying to do everyday tasks that most people without LD take for granted. To further explain this concept, think about the task that you struggle with the greatest and imagine having to do that for a great portion of your day. Not to do a poor me routine since there are alot worse things than LD but that is what it is like for us every day.

By the way, people who are tapering off of psych meds experience LD like issues so they know exactly what I am talking about.


Unfortunately, when you go to usually a psychologist or neuropsych to be diagnosed, they automatically also test for anxiety and depression. You can see where this is going as once you get that diagnosis of depression and anxiety, the next step is a suggestion to see a psych for meds.


Instead, people need to be taught coping techniques and other issues need to be dealt with such as how to find employment which is a big issue for people with LD.


I am not sure how BP has come to be associated with LD and AS. This is my theory which is totally unproven but heck, it is just as good as the med pushers who throw meds at kids without any proof they work.


Since sensory issues occur with some LDS and As such as being sensitive to noise, my guess is if that is the first symptom the kid is showing and it is a big one, he/she is going to get the BP diagnosis and the psychiatrist will stop looking for other answers.


Another reason I have for saying that is when I was doing research, the strengths and weaknesses profile for BP was quite similar to mine. Hmm.


Executive functioning issues in simplistic language refer to difficulties with planning. It is associated with the type of LD that I have and with ADHD. People without ADHD and LD can have this difficulty but it is the degree that is relevant.


Regarding OCD, my guess is that it is way over diagnosed in people with LD and here is my reason why. Due to my problems with visual memory, I will recheck something several times such as whether I locked my car door. Fortunately, I don’t have to do that with my current car since I have the remote keylock and the horn will sound to give me an auditory reminder.


But I am sure if I told many psychiatrists that, I would get that diagnosis in a heartbeat


Because the mental health diagnosis’ have become so intertwined with LD, many people see it as a fraud diagnosis which really irks me. I don’t think people on this board do that but I have seen this on other boards. All I can say is if you think it is a fraud, imagine losing abilities you take for granted such as being able to remember and comprehend what you just read. Think of what life would be like for you .


I know I have given you a mouthful so let me know if you have additional questions or I need to clarify anything.

Posted by: AA at February 6, 2009 03:05 PM

Meds VS Therapy, you said,

"Poor kid. He might have one of those diagnoses. The rest may just be side effects from the psychiatry cocktail that I am sure this kid is on. Tragic."

Good point. As a person with LD, I thought that perhaps I had AS and was in denial because I seemed not to care about people. It was only when I started tapering off the psych meds that I realized it was the apathy side effect that was doing this.

But the other side of the coin is that people do have legitimate LD/AS diagnosis's and get the whole kitchen sink thrown at them.


I was personally diagnosed with LD before I was ever put on psych meds. It was my chasing of a stimulant (I cringe when I write this) that led into the world of psych med hell. Because a test dose of Ritalin had caused me to be so focused, of course, I wanted the easy way out. Little did I know what awaited me.

Posted by: AA at February 6, 2009 03:19 PM

AA -- Not sure why you addressed your comment to me. Didn't you mean Marcie herself? I think I followed your argument and yes I agree LD and AS do get intertwined with bipolar. I think it's because they treat LD and AS with meds that lead to mania and rage etc., the same meds they treat everything else with and it leads to adverse or rebound effects mimicking bipolar. But also the symptoms of LD and AS do as you say have some similarities with bipolar or lead to that sort of behavior.

Posted by: Sara at February 6, 2009 05:20 PM

Sara it's on google, just dig around.

Posted by: Stephany at February 6, 2009 06:44 PM

Interesting, but I never hear these mental health care advocates (like Marcie) outraged about the treatment patients receive in psych hospitals. I wonder why. They're all about getting people into treatment, but they don't seem nearly so passionate about finding out what that treatment entails. If she wants to find something to get outraged about maybe she could read up on King's County Hospital & find out what kind of lifesaving psych treatment exists in the U.S.

For the latest on King's County Hospital...(Are the psychiatrists in these places blind? or do they just not give a damn?)

http://www.nytimes.com/2009/02/06/nyregion/06kings.html?_r=1&scp=1&sq=king's%20and%20hospital&st=cse

Posted by: Lisa at February 6, 2009 07:59 PM

AA-

I like how you described the daily difficulties you encounter. I have the same difficulties (plus more) after sustaining a brain injury from ECT. When I try to explain it though I don't seem to adequately get across how the problems permeat my daily life/functioning. And the fact that all that extra effort required to do what most take for granted will send me into Neurofatigue and sometimes take me days to recover.

I finally figured out (by myself, none of my doctors or therapists helped with that) that the severe social anxiety I started experiencing after ECT is more likely an overload reaction to all the sensory input I experience out in public (same as Neurofatigue).

angel84-

I think you hit the nail on the head with this: "If there wasn't anything to the stance of Furious Seasons, a person like this wouldn't be attacking on such a personal level."

Really good discussion going on here by some very eloquent people. Philip's exceptional investigative reporting and the ongoing discussions here in the comments are what keep me coming back to this blog. There's certainly more relevant conversations going on here than in any mainstream reporting.

Posted by: SallyT at February 6, 2009 08:34 PM

Lisa, I feel the people hired at Kings Hospital just don't give a hoot., like you said. First what they did to Ms. Green was deplorable. Secondly, what is going on now that the NY Times and other papers are writing about, its barely on the radar. It didn't make the local evening news on any of the four networks here in the city- (ABC, CBS, NBC or FOX). I agree that Captain Sully is amazing and should be awarded Laurels and rightfully deserves the Key to the City he is getting from Mayor Bloomberg on Monday, but this should be on everyone's radar too.

I wrote tonight to a friend who is an editor at the Post. I remember we were sitting next to each other in Intro journalism and learned "If it bleeds, it leads".

It's bleeding damn it. It's bleeding. Docs like Biederman and the ones at the hospital and the nurses like Nurse Rachett should be put up in a court setting like Nurenberg and made accountable for their actions.

But i am afraid this is just a dream, and it's time to go back to bed.

Take care.

Posted by: susan at February 7, 2009 03:03 AM

Phil: Lisa is right. Here's the full report on Kings County Hospital. It would be nice if you could do a piece on it. The report speaks for itself.

http://graphics8.nytimes.com/packages/pdf/nyregion/2009/2009130KCHC.pdf

Posted by: Alex at February 7, 2009 05:46 AM

Great point Lisa, and that's a must read article. In inside of so many institutions are inhumane, I would stop a freight train with my hand to prevent anyone I know from being place in one; people have no idea unless subject to these places how much of a hell hole they are! and the treatment is the same old medication routine, except worse! because the rest of the time safety is an issue, health is endangered and the drugs are over prescribed to shut people up.

Posted by: Stephany at February 7, 2009 08:28 AM

Wow. This lady sure likes her labels!

Posted by: Sherry at February 7, 2009 08:45 AM

Lisa,
For the latest on King's County Hospital...(Are the psychiatrists in these places blind? or do they just not give a damn?)

In my experience they don't give a damn.

Posted by: Sherry at February 7, 2009 08:58 AM

AA,

You were addressing to me. It was me who wrote about the diagnoses
Bipolarity, OCD and ADHD.


"Because the mental health diagnosis’ have become so intertwined with LD, many people see it as a fraud diagnosis which really irks me. I don’t think people on this board do that but I have seen this on other boards. All I can say is if you think it is a fraud, imagine losing abilities you take for granted such as being able to remember and comprehend what you just read. Think of what life would be like for you."

Please, I never considered LD as a fraud and I never thought that people could think of this as a fraud.

No! What I was trying to understand is exactly what you explained: diagnoses are making things more confuse instead of clarifying.
My concern is how can this boy have been diagnosed with so many diseases.

Thank you for your explanations.
I'll visit the link you've left.

Posted by: Ana at February 7, 2009 01:37 PM

Ana, I could swear that both you and Sara had questions about the diagnosis' but then again, I could have gotten confused. Due to my insomnia, I am too tired to go back and see what happened.

Anyway, I didn't mean to imply you considered LD a fraud. I think I am just sensitive about the issue because even before I was focused on the issue of psych meds, I felt many people didn't believe its legitimacy due to it being an invisible disability.

Then when its lumped in with psychiatric diagnosis's, it makes me cringe big time.

Sally T, I am so sorry you have ECT. I never was in danger of having it but I do realize that if I had ended up in the hospital due to the suicidal ideation I experienced from Prozac, that would have been a possibility. On top of having LD, that would have been devastating.

You said, "When I try to explain it though I don't seem to adequately get across how the problems permeat my daily life/functioning. And the fact that all that extra effort required to do what most take for granted will send me into Neurofatigue and sometimes take me days to recover."

I couldn't have said it any better myself. Not to compare my situation to yours as I think a brain injury from ECT is far worse but that is what my life was like even before I ventured into the world of psych meds. And in writing this response, it makes me realize why I wanted Ritalin so badly which then led to my world of psych med hell.

Anyway, I admire the courage you have shown and wish you nothing but the best.

Posted by: AA at February 8, 2009 07:24 AM

Marcie Lipsitt's vitriolic comment made me think of Gandhi's famous statement: "First they ignore you, then they laugh at you, then they fight you, then you win."

Based on that, I'd say the message of this blog is already past the second stage and well into the third.

Posted by: Kent at February 8, 2009 12:35 PM

AA --

I think you were confused by the placement of the comment and the poster's name. The poster's name is below their comment, not above it. Ana's comment was just below the acknowledgment of my previous comment. Just thought I'd clarify. I was trying to figure out how you made that mistake myself.

I sure wonder if Marcie ever came back and looked at the responses. I guess we'll never know. Some day, down the line, she may remember us when things start to go south for her son as I'm afraid they almost certainly will. I'm sorry we usually don't get heard until it's too late.

Posted by: Sara at February 8, 2009 01:46 PM

Thanks Sara, now I understand what happened. Don't know if that was an LD moment, a med withdrawal moment or an insomnia moment.

Regarding your point about Marcie, I had the exact same thoughts regarding a board of parents just like her. It literally made me gag

Don't be so sure we will get heard even if something goes terribly wrong. The woman whose daughter tragically committed suicide at 20 credits Biederman for enabling her to live that long.

Sorry for being so cynical but I can't help it after reading about that woman.

Posted by: AA at February 8, 2009 03:52 PM

She's clearly having trouble regulating emotion with objectivity. This appears to be one of the problems with the whole debate/issue. Phil, I think as a whole the way you present your blog is well balanced. Anyone with an open mind seems welcome. That someone should fire off with such ferocity at what was a fairly innocuous article is quite sad and reeks of insecurity. It is indeed a shame her child is so ill.

Posted by: Richey at February 8, 2009 07:22 PM

AA,
I understood that you misunderstood. :)
I was not very clear on my writing. I'll try to be more specific.

Posted by: Ana at February 8, 2009 08:42 PM

fuckin' nuts.

Posted by: JC at February 12, 2009 02:32 PM

Yea, I'm form Boston and my mom doted on an MGH psychiatrist that works with Biederman years ago when i was misdiagnosed with bipolar disorder.

I will say two things.

One: The seven medications I was put on caused "executive functioning deficits" times ten and caused a host of neurology concultations that flirted with the idea of my having as mitochondrial disorder or some real, familial genetic disorder. Of course it turned up nothing. But my mom did at one point tell me my brain might keep "degenerating" and essentially that I could die -- 8th grade.

My mom appears fairly normal to most people. She is divorced and through grade school her inner circle of freinds has steadily dwindled. Rather predictable.

So, lets put it this way. Biederman's colleague diagnosed me with "pediatric bipolar disorder". About three psychatrists and a half dozen psychologists have undiagnosed me. I don't have it. They're making shit up. Go Figure.

Number Two: This mom has a full blown case of Munchausen's Syndrome by Proxy -- just like my mom. And by the way, I don't think she should go to prison or be charged with neglect, but she needs serious help and I pray for her son as well. And hope he is at least as strong-willed as I was.

Posted by: JC at February 12, 2009 02:44 PM

From this lady's response to your blog, it seems the university-pharmceutical nexus is very upset and dismayed that the wider public is being more widely and more closely clued in on what's going down. Imperious emails from academics who always imagine themselves closer to God than anyone else are be expected. If you start to see what these guys are doing and say so on your blog, they are going to get angry and upset and God damn you for saying anything! The only thing I would say is don't forget Rebecca Riley. Everyone is supposed to not care when a little girl dies and all they did after she died was make sure all the other little 4 and 5 years were still taking all those dangerous drugs. When a horror like this happens, it can't go on forever.
Sooner a later a correction starts taking form. The worst thing for these academic guys is to have admit to the broader world that they are wrong and that they know they are wrong and they have to stop taking the money. And whatever you want to say that questions their position even a little, you're going to get arrogant anger and upset. Well, let's see what more unfolds.

Posted by: Larry B. at March 25, 2009 12:36 PM

Miss Marcie is a serial editorialist / commentor who seems to think that people can't quickly Google enough about her to know she spends the vast majority of her time slandering/libeling others in order to push her own agendas. It's what she does and she doesn't seem to ever let the facts get in the way of her writing.

Posted by: Danielle B. at April 16, 2009 12:38 PM

I came across this blog while finding out who Marcie is - she put a really annoying letter to the editor in our little local paper about something that was really none of her concern.

In the course of looking her up, I came across this site. Anyone that has a child to whom they are considering administration of neuropsychiatric compounds should come here first. I hope that your rankings on search engines, and links to the blogospere draw many to read what is available here.

Posted by: jeff at April 17, 2009 12:25 PM
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