December 04, 2007Doctors Should Stop Abusing Dementia PatientsThe Wall Street Journal is just out with a front page article on the use of anti-psychotics in nursing home patients, literally hours after the BBC's "Panorama" ran a similarly-themed program in the UK. Here are some bits from the Journal's coverage: "Nearly 30% of the total nursing-home population is receiving antipsychotic drugs, according to the Centers for Medicare & Medicaid Services, known as CMS. In a practice known as "off label" use of prescription drugs, patients can get these powerful medicines whether they are psychotic or not. CMS says nearly 21% of nursing-home patients who don't have a psychosis diagnosis are on antipsychotic drugs." Those numbers are alarming, especially since there is no scientific proof that these drugs work well in dementia patients and are, in fact, outperformed by placebo as a recent round of the CATIE study asserted. According to IMS Health, in 2006 doctors wrote out 45.4 million prescriptions for atypical anti-psychotics versus 33.6 million in 2001, a 35 percent increase. Much of that has come on the backs of the elderly, as well as adults with bipolar disorder and children with ADHD and alleged bipolar disorder. "That is what happened to a woman listed in New York state health department inspection records as Resident #18. The 84-year-old Alzheimer's patient, who lives at the Orchard Manor nursing home in Medina, N.Y., likes to wander and roll her wheelchair around her unit, according to a report filed earlier this year, and sometimes she nervously taps her foot. Last time I checked, the Constitution still allowed Americans to be a handful. Doctors and nurses and pharma reps might want to review that document. "'You walk into facilities where you see residents slumped over in their wheelchairs, their heads are hanging, and they're out of it, and that is unacceptable,' says Christie Teigland, director of informatics research for the New York Association of Homes and Services for the Aging, a not-for-profit industry group. Her research, which she believes reflects national trends, shows that about one-third of dementia patients in New York's nursing homes are on antipsychotics; some facilities have rates as high as 60% to 70%. 'These drugs are being given way too much to this frail elderly population,' Dr. Teigland says." And then this jaw-dropping justification for the advertising of anti-psychotics to caregivers of the elderly by some flack at AstraZeneca, makers of Seroquel: "A spokesman for AstraZeneca Pharmaceuticals, the maker of Seroquel, says 'bipolar depression afflicts adults of all ages, including seniors.'" Um, I guess I'll have to ask AZ to explain how the agitation and wheelchair rolling that get old folks slapped on these drugs is correlated with bipolar depression, which is a very nebulous clinical term to begin with. But there's more: "In Massapequa, N.Y, a nursing home was recently fined by the state for injecting 90 doses of Haldol into a 96-year-old Alzheimer's patient. The woman, identified only as Resident #2, enjoyed listening to music and getting her nails polished, according to a state report. But when agitated, she banged her hand on the table and sometimes yelled. Ninety injections of Haldol in six months? Bizarre and likely at a level that could be considered abuse or assault. If I were related to this woman, I'd go after the nursing home's license and file a civil suit. I cannot even begin to congratulate the Journal for taking this on and giving it such prominence in the paper. Same goes for the BBC. Posted by Philip Dawdy at December 4, 2007 12:07 AM
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This is absolutely not acceptable and as an advocate I personally am going to look into the case of 90 injections of Haldol as if she was my own Grandmother/Mother Let me remind people that Haldol quite often induces psychotic symptoms, and is used on a regular basis inside psych wards to quiet people as well. [with forced injections]. Posted by: Stephany at December 4, 2007 03:58 AMIt's a very disgusting situation. Not to mention that a tiny dose of an anti-depressant or major tranquilizor or mood stabilizer might be all it takes to affect balance and cause a fall. A fall at that age can mean a broken hip, arm, just about anything might break. Then there's pain and more meds and the whole thing spirals out of control. Posted by: therapydoc at December 4, 2007 04:09 AMPsychosis and psychotic are defined by authority. When the patient has it and when it stops , is not judged by blood test or anything scientific measuring psychotic chemicals in the blood, but by how cooperative/obedient the patient is to those in authority. Mark, the agitation and self-harm [biting self, pulling off crowns from teeth as examples]can be part of the Alzheimer's progression. I've seen patients beat their heads, scratch themselves raw--have to have teeth pulled[seriously]. It's a wicked attack of the mind, where yes, they are still "there", I truly believe that--and it in my opinion is the wanting to leave the situation, they are trapped in their minds. Now, music and singing connects to a part of the brain that quite often the patient remembers songs from childhood, etc. if loving care is provided, and time spent with a person, their anxiety diminishes, and they sing, and often shed tears. This is why medicating them is in my opinion just trying to shut them and their feelings up. Though the agitation is there, part of the illness---places are not equipped with staff, or ppl. who understand dementia or Alzheimers. I've been able to "speak" to my daughter via singing her favorite songs, and quite often, after weeks of "being missing" she will belt out the tune like no other. This is important to understand, that when discussing dementia, it can be applied to mental illness, and psych wards that have pianos--I've heard the most beautiful music played by patients who are the most agitated. Music therapy is better than Haldol. If anyone has ever participated in singing at nursing homes in choirs--you know the happiness I've seen on grandmothers/grandfather's faces. Posted by: Stephany at December 4, 2007 11:26 AMMark,, Check this link out: http://tinyurl.com/yqom4o This is relevant exert: At the Cobble Hill Health Center in Brooklyn, Dr. Louis Mudannayake decided to try to change the thinking at his 400-bed nursing home. Ignoring naysayers and the doomsday predictions of senior nurses, 18 months ago he put together a team of pharmacists, social workers and recreational therapists to review every atypical prescription. If a new roommate caused agitation, room assignments were changed. If a new aide was hit while dressing a patient, the aide was given special training on that patient's preferences and routine. Though the nursing home's resources were initially stretched, Mudannayake said the quality of patients' lives improved. "Ultimately, I'm convinced financial expenditures will be diminished, because it's easier to manage a patient who is calm," he said. Atypical use at Cobble Hill has been cut from about 25 percent of patients to about 10 percent, he said. Almost 40 percent of patients were taken off the drugs completely; 75 percent of those still on the drugs have had their dosage reduced. "We instituted a cultural change. That's what's required to bring the numbers down," said Mudannayake, who said psychiatric hospitalizations did not increase as medication dropped. "You'll always have doctors say there's nothing else to use but atypicals, and I agree there are a small minority of patients where you need to use these drugs. But not in the numbers we are using them." Your advice though cuts right to the heart of the matter. I have worked with students with autism who can have similar issues with anger. One time, I made a mistake that caused somone to have a meltdown. I apologized to him and guess what, he calmed down immediately. I am no genius but if someone like me who doesn't have these fancy degrees can think of this, certainly, doctors who know better should be able to. This whole issue makes me literally sick big time. I feel horrible when anyone is overmedicated. But when you pick on people who can't fight back, I feel even worse. AA Posted by: AA at December 4, 2007 11:29 AMthank you for this article! I fought for a year to get my husband removed from antipsychotic drugs . He suffers from Alzheimer's and was intially aggressive in the NH. Their solution was to try all these drugs including drugs for epilipsy. They only made him more agitated and finally I persuaded his VA home to remove him gradually. It worked! I think doctors should be kept from prescribing these drugs for dementia patients especially the elderly. Your article helped give validity to my conviction about the horrible solution for " unacceptable " behaviors. Posted by: joyce at December 5, 2007 02:18 AMWhen people face misfortune, the helping professions' conspirators seep out of the woodwork to claim their piece of the prize. It matters not if this is a beaten child or an elder who has substantial savings. Any ruse is used to drug the creature, for profit, so that he appears unlike "us". Then it is an easy matter to abuse this creature and take what he has, the profit again. What if the hapless person has no money? Here is where the $ cleanup is enormous. It also is where the weak spot is. These victims are used as conduits of an almost endless flow of federal money. This is where these crimes can be stopped. Causing false information to be given to a federally funded health care program is a crime, a federal crime. Notice that the false information does not have to be presented by the person who will gain financially. The lie, itself, is a crime. Eventually there will be investigations because there is a limit to federal money. The country can't afford it. So the most visible offenses will be stopped. What about the less visible and well hidden crimes? They will be better hidden. I don't have any hope for correcting this human tragedy for profit. Posted by: Jana at December 21, 2007 05:37 PMI found out the hard way, in Texas, that behind the abuses and frauds was deal G.W. Bush made as he frivolously served citizens as Gov. of Texas. The deal was called Texas Medical Algorithm Project (TMAPS). The plan was then adopted in other states. Now the states are filing lawsuits against pharmaceutical companies. Texas Attorney General reported that the state was conned into the TMAPS deal. If you knew the hell that the state over-sight agencies put me through, the lies and cover-ups, it would be hard to believe that the state was conned into anything. A non-reported side effect, is that the states appear to be addicted to pharma gifts and grants. Reading how the plan works, it appears to be a profit sharing arrangement between the state and pharma. Even after the truths are exposed, the drugging and frauds continue. My friend Allen Jones (Pennsylvania whistle blower) did an excellent job in his investigative reports. Evelyn Pringle has done an excellent job to expose TMAPS, in her articles. Posted by: Brenda Durant at June 9, 2008 05:35 AMPost a comment
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