July 10, 200707-10-2007 Media MadnessIt is blazing hot in Seattle today as it will be the rest of the week plus I am up to my elbows in outside work the next couple of days, so posting will be a bit erratic. However, I pass along the following. First, I am pleased to let you all know that a letter I submitted to the editor of the Journal of Clinical Psychopharmacology, which questioned some of the statistical methodology of last year's Seroquel BOLDER II study, has been accepted for publication in the journal. The BOLDER II study was one of two studies used to gain FDA approval for Seroquel for bipolar depression. Now, the study's authors will have to reply publicly to my query and, as a patient, that makes me feel good and bad all at once. After all, aren't mental health professionals supposed to be the ones publicly asking these sorts of questions? Remember the crazy pizza bomber case in Pennsylvania in 2003? Allegedly, someone with bipolar disorder was behind it. I seriously doubt that bipolar disorder alone could even begin to get at the level of sadism involved in this crime. This was straight-up sociopathic behavior and that's not bipolar disorder. Reason's Ronald Bailey on the pros and cons of how the FDA has managed the SSRI/black-box warning controversy. A New York agency with a long track record of helping the disabled--including those with mental illnesses--get jobs. Good for them. Work is recovery. CL Psych has quite a few thoughts on Aubrey Blumsohn's amazing work on the JAACP and the infamous Paxil Study 329. It is great that academics like them are trying to force journals to be accountable for the accuracy of the scientific representations made in their pages. An item from PsychCentral last week--so I am late, late, late!--on how many schizophrenics ditch their meds after one year of treatment. Ninety percent. Yikes. This of course tells you a lot about problems with the meds and perhaps recognition issues with patients. I'll take this issue up again soon as it is horribly complicated. Posted by Philip Dawdy at July 10, 2007 10:36 AM
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Wow!Congratulations on the publication of your letter in the Journal. Thank you for advocating for so many people by doing so. I really love how the authors will have to answer your questions. This is an enormous victory in my opinion. Posted by: Stephany at July 10, 2007 08:27 PMRE:Schizo Would it be possible to publish the aforementioned letter here, at the blog? Posted by: Masale.Wallah at July 11, 2007 11:37 AMi'll link to it on here as soon as it's published but that may be a few months away Posted by: Philip Dawdy at July 11, 2007 11:39 AMRe:Mark: Please explain how you are a successful self-accepted schizophrenic off of medications, because that is what people need to hear.If there is a chance at recovery off of medications I am positive that someone needs to set an example of a medication-free based life.Which therefore challenges the psych world and it's limited vision for mental health wellness and long term recovery options. I feel time is of the essence for those who live medication free to speak, because when you speak it is on the behalf of the silent ones who cannot speak for themselves, and frankly it is time to give the 1-2-3 plan instead of an opinion.What works?Why /and How? Posted by: Stephany at July 11, 2007 10:24 PMRE:"successful self-accepted schizophrenic" please explain, asked Stephany. == personally == I can only hope it gradually goes away, or magically goes away one day. == The Big picture ===
No one officially recognizes what psychiatry did in the past, how that past is still the core of psychiatry today. Confinement and forced chemicals to force someones behaviour to change. The story of the competition between the wind and the sun.Illustrates love is better than force. Story goes like this. The wind and the sun were having an arguement on which was more powerful. The wind boasted it was very strong, and the sun protested it was just as strong or stronger. They agreed to a test of their powers. They chose a man on a walk , "I bet I can take that mans jacket off", said the wind. The wind started in on the man, and the man gripped his jacket to himself. The wind grew stronger and the man held his jacket even stronger. The wind realizing he would injure the man if he blew an harder, conseded defeat, and stopped blowing. The sun said "Now let me try" and shone down warmly on the man. The wan loosened his grip on his jacket and continued on his walk. The sun continued to shine pleasantly down, and the man loosened it up. The man being warm thought to himself "what do I ned this jacket for?" and took it off, and hung it on his arm. The suns warmth had beaten the winds use of force. What works and doesn't work can only be done on an individual basis. In general REALITY The patient has to have cognitive ability to decide to change their life for the better. Some can't, some are too doped up by psychiatry or some have been too damaged by psychiatry to give a fuck. Mark, thanks for writing an insightful reply to my questions, I think it's really well written. Posted by: Stephany at July 12, 2007 07:40 PMMark, I want to second Stephany's thanks to you. Your response is insightful and well written. I know all too well what it's like to go from a troubled family to an incompetent and corupt psychiatric system and applaud the courage it must have taken you to get to this point. Posted by: Sally at July 13, 2007 05:41 AMI hope your comments give strength and hope to the thousands of people out there trapped by a "corrupt and inept" mental health "system". I have come to believe that the majority of medications given, particularly Zyprexa and the other atypicals, and the SSRIs, are dangerous and life threatening, if not life taking. I have lost both my father (ECT when I was a baby and it was new) and my son (Zyprexa - profound hyperglycemia) and will fight the battle the rest of my days. In an earlierr discussion about ECT, most were against it - feeling it had done permanent damage. However, suicide would have been worse and it was suicide that led us to this point. I am against forced ECT but I am also against taking away what is often the only alternative left. Posted by: Ellen Liversidge at July 17, 2007 09:13 AMPost a comment
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