October 10, 2006

John's New Book

I began reading, as opposed to skimming, John McManamy's forthcoming book on bipolar disorder and depression. It comes out next week and is entitled Living Well with Depression and Bipolar Disorder. Here is a passage that aligns so well with the reality I know as patient who writes about these dandy illnesses as well as with the intellectual framework with which I have tried to treat my illnesses and have tried to think about them that I swear it's like John and I are channeling one another:

"Blind faith is your worst enemy. Whether it's the pharmaceutical industry, the psychiatric and talking therapy professions, or natural health advocates, all are guilty of overselling their products and services and downplaying their own failings. The negative campaigning that goes on would put a politician to shame.

Yes, we need to listen to the professionals who treat us, but they also need to listen to us. They are the ones with the specialist knowledge, but we are the ones living in our own skins with access to the complete picture. It is my fervent belief that learning about our illness equates to better outcomes.

'Knowledge is necessity,' has been my mission since Day One of my Newsletter and Website, and it applies with equal force to this book. The more we know, the better we will understand our illness and the smarter the choices we will make in its management, in partnership with our treating professionals. Patients who are motivated to build partnerships with their doctors have a better chance of achieving a successful outcome. An editorial in the March 27, 2004 British Medical Journal reports that two Stanford University studies found that so-called "expert patients" with chronic diseases felt better and had 42 to 44 percent fewer doctor visits than the other patients in the studies."

I am going to let this speak for itself and go back to reading the book. More to come. Oh you can buy the book at Amazon.com and such places. I hope to God that John's publisher pushes the hell out of his book. As I have mentioned before, it is huge that a patient has taken on what is generally forbidden turf—the doctor's world of treating us.

Posted by Philip Dawdy at October 10, 2006 12:02 AM
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Comments

I have always believed in this statement :

Knowledge is your best weapon.


As a person who works in a school system for a job, I can assure John, that this book will get into the hands of teachers. Teachers often are at a loss on how to "handle" students with any spectrum of mental illness.

There are literally walls of books in the classroom I work in, and there are few, if any, that are there to consult information from regarding mental illness.

Good luck.


Posted by: Stephany at October 10, 2006 08:34 AM

If I read that book, I'd probably end up ripping it up like I do all the other psychiatric books I read. No offense to anyone, but I usually want to kill myself after I'm done reading a book that deals with mental health. Sometimes I feel that way, even by reading this site. It makes me cry.

Posted by: Gwen at October 10, 2006 11:00 AM

Hi, Philip. Many many thanks. Yep, it's spooky how we seem to channel each other. Same thing happens with Liz Spikol's blog - twice the two of us wrote about the same thing on the same day with just about the same take.

Hi, Stephany. I really appreciate your comments. I'd love to have educators read this book. I still vividly recall how I was horribly misunderstood in school, so if just one kid doesn't have to go through what I did then I will be very happy. Please feel free to offer me advice on how to reach your colleagues, as this is a real mission to me.

Posted by: John McManamy at October 10, 2006 11:10 AM

gwen, if something upsets you on a consistent basis, then you should not read it anymore. you have to have self knowledge and know what your triggers are--that's one the themes of john's book--and that's something you've got to be honest about with yourself....and stop playing into it.

Posted by: Dawdy at October 10, 2006 11:22 AM

Hi, Gwen. Philip is right. Definitely don't read my book. Living well is all about not doing things that may cause personal distress and trigger an episode. Best to treat the book as if it's radioactive. Believe me, I understand.

Posted by: John McManamy at October 10, 2006 01:24 PM

Hi John and Philip,

Wow, thanks so much for you concern and support. That means a lot to me. About your book, John, I think it's an awesome thing to have written -- with the crummy state of affairs the mental health world is currently in, I think you're doing a TREMENDOUS serivce to society. I really think that your compassion and leadership is OUTSTANDING. Anyone who tries to help people who are suffering is a remarkable individual, and especially someone who takes the time and energy to write and publish a full fledged book -- that's really something (not to mention talent!). You are amazing. And same for sure goes to Philip with his site, and with his Weekly work, which I've told him many times. Both of you are incredible: I want to be just like you.

As for me, I get distrubed really easily when stuff starts to remind me of my own hospital and general psychiatric expiriences... so yeah, I guess it's good for me to stay away from that kind of thing. My doctor says I have a lot of PTSD regarding all that.

But, John, I want to thank you so much for all the work you've done to make this world a better place for those suffering from mental illness. You are a gift.

Best wishes,
Gwen

Posted by: Gwen at October 10, 2006 02:14 PM

Hi, Gwen. Many thanks. Your very kind remarks mean a lot to me.

Posted by: John McManamy at October 11, 2006 06:00 AM

Hi John,

The best way to get your book into the hands of educators, is to talk to all of the parents of the early onset bp parents you have (I'm pretty sure) met or spoken with via email.
Get the book to them, and they place it into the Principal's hands.

Some classrooms have libraries of books, like I am fortunate to work in, yet those are the teacher's personal collection.

Most all high school librarians also special order books such as yours to add to the check-out list for teachers.

The largest, un-tapped group of educators, are in fact elementary and junior high school teachers. This is where a lot of kids have problems, and are either medicated for wrong reasons, or, have not been properly dx.

My daughter suffered from 6th grade right through high school, which she is attending beyond her Graduation year....I often took the Bipolar Child book to my IEP meetings and placed it open, standing up for display and many teachers borrowed my copy.

They are so desperate for information, and I believe that what we know helps adults, we can use to help the youngest of all: early onset bp'ers.

I look forward to the read.

I will do what I can in my District in Washington state. It covers 110 sq miles, so youre good to go to check that off. :)

Good luck!

Posted by: Stephany at October 11, 2006 08:04 AM

Gwen,
I just wanted to add: your comments here are always insightful, and I enjoy reading them. I appreciate your honesty, and fresh perspective.

On the note of reading things (or anything else for that matter) that upset you...

As Philip stated, it is important to be honest with yourself; basically we all have limits, and one key factor to our stability, is to be tuned in to ourselves enough to know the personal limits we have.

I have actually limited my time on the computer to push this idea forward with myself. Sometimes, I really think we can read too much about mental illness, with good intentions to help ourselves, but also need to take breaks for our minds and not do that.
I hope I made sense.

Take care,
Stephany

Posted by: Stephany at October 11, 2006 11:15 AM

Thanks, Stephany!

Gwen

Posted by: Gwen at October 11, 2006 02:45 PM

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